In four out of Jamie Andrews UK unique genetic disorder, which is not a resident of any one of the Earth. Every two weeks, the boy must be pouring 400 grams of fresh blood just to stay alive.
The kid is suffering from chromosomal disorders Known as congenital aplastic anemia Blekfana Diamond . Every two weeks, Jamie l transfused fresh blood To increase the number of red blood cells. To date, 93 children have received a dose of more than 100 donors. But he will have to continue to go through these procedures, as long as the doctors do not pick him for a suitable donor Bone marrow transplantation .
Without these blood transfusions oxygen can not be transported with the blood around the body of the boy. Deprived of fresh blood of a child falls into a coma and die.
Surprisingly, with such courage four year old boy is sent to these procedures. "He's my little man, - says the mother of the child, Sarah Allen. - Jamie does not allow the disease to overturn it. In our family, the word" transfusion "sounds as frequently and casually as" B ". In the first days after the transfusion Jamie cheerful and energetic - running around the house, playing, dancing. But after 8-10 days, you can see how it is changing. It is becoming more passive, loses appetite. We are always on duty. Even a slight increase in the temperature of our boy could mean serious problems requiring hospitalization " .
First blood transfusion Jamie was at the age of seven weeks after doctors fixed his heart palpitations. Since then, he went through the procedure every two weeks. His blood samples were sent to the US, then the kid and made his diagnosis. A person suffering from aplastic anemia, the body produces new red blood cells.
The disease belongs to the extremely rare, and the case with Jamie has no precedent, since it was the consequence of anemia is available only in the boy a unique chromosomal malfunction.
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